About Bella Cruz

Isabella is undeniably a miracle baby.
At 30 weeks pregnant, we were told she would not survive more than a few minutes to a few days, if she survived the delivery at all. She was diagnosed in-utero with bilateral renal agenesis (or absence of either kidney - a condition incompatible with life). Also she had fluid around her heart, her lungs were not developing properly due to the lack of amniotic fluid, her intestines and bowel were blocked, and there was a 1 in 3 chance she would be born with Down Syndrome.

On March 18, 2009 Isabella came into this world already a fighter. She was intubated immediately after birth, her right lung collapsed so a chest tube was also inserted and she was so swollen and puffy we could barely see her beautiful face and eyes. The next morning we joyfully learned that while we weren't sure what function was there, she DID have one kidney (a second was found later)! At one week old she had surgery to repair her intestines. The day after she was completely off the breathing tubes and oxygen. A couple of days later her chromosomes came back - COMPLETELY NORMAL. She did not have Down Syndrome. And the fluid around her heart had disappeared. On her one month birthday, we were able to take our miracle home.

She was diagnosed from birth with End Stage Renal Disease, or more commonly known as Chronic Kidney Disease. Over the past few years, we have had many ups and downs mostly related to her growth because of the lack of kidney function. She is on many meds a day, has a feeding tube, and takes growth hormone shots EVERY night. We have always known that a transplant was inevitable and will improve her quality of life but we did not know when it would be time. Well, now it's time and we are putting our full trust and faith in God as we have through this whole journey. We know the process for transplant is going to be rather busy so we wanted to create this site to keep everyone up to date as we move forward with the process. Please keep her and our family in your prayers. We appreciate your support more than you know! Love, The Cruz Family

Mark 10:27 "With man this is impossible. But not with God. ALL things are possible with God."

UPDATE: On 6/12/13 Isabella received a kidney from her mother, Gia. Both surgeries went great and Bella is thriving.  She has gained almost 6lbs and grown almost 5 inches since the surgery!  Gia feels great and is even training for a 1/2 Marathon.  Bella still is on weekly lab draws and handles them like a champ although we are hoping soon we can go to bi-weekly draws - her little veins are getting tired and have accumulated quite a bit of scar tissue.  We are going to clinic at Riley one time per month but are very close to being moved to bi-monthly visits. We are hoping to have a COTA event this Spring and will keep everyone informed.  Thank you for all of your support and prayers! 

 

ABOUT COTA:

With the cost of a transplant often exceeding $500,000, many transplant families are unable to shoulder the financial burden of such a procedure. The Children’s Organ Transplant Association (COTA) is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses. In Brownsburg, volunteers are raising funds for COTA in honor of transplant patients like local toddler, Isabella Cruz.

Isabella is the daughter of Fred and Giannina Cruz. The doctors at IU Health Riley Children’s Hospital in Indianapolis, Indiana, have recommended a life-saving kidney transplant. An estimated $50,000 is being raised by Brownsburg volunteers.